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#1
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My mom & dad want to pick me up for the week. My nurse is really concerned made sure I'm eating REAL food. I have to tell my therapist tomorrow. It sucks because if something happens to my husband all these people will suggest institutionalizing me. I hate no one has faith in me.
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Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
BeyondtheRainbow, Blueberrybook, Crazy Hitch, unaluna
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#2
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I don't think it's that people don't have faith in you. It's just that they want to be sure you are ok. They have some degree of responsibility for you, just like my therapist has for me. There were times before I was on clozaril that my therapist took my sharps from me. The first time it was because I had a sharp knife and I wouldn't promise him that I wouldn't use it while ripping up carpet in my house and he felt I was too impulsive to be safe.. Another time it was part of a safety plan we put together while I was IP and coming home at high risk. That same time I had to have my meds locked up where I couldn't get them without supervision. But things changed and now I haven't needed an extra line of safety for a long time. Situations change. When I was working I had to sometimes recommend that someone not go home or have substantial changes to home before they went home because it wasn't safe. If I'd just let them go home and anything had happened I would have felt so guilty and if I'd ignored things I could have been legally responsible and/or sued for malpractice.
It sounds like your team works together and tries to make things the best they can for you. Tell them how you feel. If you need to ask for rational behind recommendations. It's your care but they have to watch out for you as well. How many more days until your husband is back?
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 9 mg/day patch,, ,Gabapentin 1600 mg & 100-2 PRN,. 2 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx3 daily Last edited by BeyondtheRainbow; May 11, 2026 at 04:19 PM. |
Blueberrybook, Crazy Hitch, unaluna
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MuddyBoots, unaluna
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#3
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He's coming back Sunday. I know my therapist is not going to like it I'll probably do another safety plan with him tomorrow.
__________________
Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
BeyondtheRainbow, unaluna
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#4
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How's it going?
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 9 mg/day patch,, ,Gabapentin 1600 mg & 100-2 PRN,. 2 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx3 daily |
June08
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#5
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Surprisingly well, t says it's because I thrive in chaos because of my PTSD and he's building a list of things to talk about when h gets home.
We have inspection on Wednesday. Our house is a mess. My dog ripped through 3 blankets and my comfy sweater. So there's fluff everywhere. My daughter made me cookies. I have piles of laundry to do. We'll get a cleaners if it works out on Tuesday.
__________________
Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
BeyondtheRainbow, Discombobulated, June08
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#6
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I’m glad things are going well.
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Victoria'smom
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June08, Victoria'smom
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#7
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I just told h he could stay there, get a job, and I'll come when we can get stable housing. I say this because it doesn't cost 3,600 to park a year, we can live well on one income and our family is getting older there's a place that lot rent is $350 so if we can double down on the trailer then we'd be keeping a lot of extra money.
Update he's coming home tomorrow.
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Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog Last edited by Victoria'smom; May 16, 2026 at 04:27 PM. |
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#8
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So how much longer will you be alone? Are you ok? I understand the desire to live more cheaply but I hope you're ok during the alone transition time.
Is there anything we can do to help you get through this?
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 9 mg/day patch,, ,Gabapentin 1600 mg & 100-2 PRN,. 2 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx3 daily |
Victoria'smom
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unaluna, Victoria'smom
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#9
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H got home late last night. We're scrambling to set thing up to go there. He may have a summer client. So we'd wait until September. We need to set my daughter here meaning we need to talk to a housing lawyer. We're trying to get a house over there and make it me friendly but it's going to take a lot of research. We will not have Medicaid there 😭. All the therapist look squishy there no one that deals with psychosis I'm thinking about trying to get refered to the act program.
__________________
Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
BeyondtheRainbow, unaluna
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#10
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I think you were referring to possibly getting a mobile home? I lived in a tiny one in grad school. I honestly loved it. It was only 400 sq ft so really tiny. But it was great for me. When my mom is gone I plan to look into that again when I move to be close to my sister. Anyway, that's irrelevant but what I intended to say was that I had a patient long ago who lived in one that they modified to work for her wheelchair. I can't remember all the details but it worked well. I'm pretty sure they had taken a closet out in a bedroom with attached bath so there was lots of space for equipment in the bedroom and the bathroom was remodeled to have an accessible shower and raised toilet with bars where she needed them. That place had wider hallways; I know my mobile home did not. But it worked nicely for her.
I hope the summer client works out!
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Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 9 mg/day patch,, ,Gabapentin 1600 mg & 100-2 PRN,. 2 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx3 daily Last edited by BeyondtheRainbow; May 18, 2026 at 04:16 PM. |
unaluna
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unaluna
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#11
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We're looking for a mobile home that we can modify for a wheelchair when I need one. We're trying to move one to land and put it on a cement base. H's mom offered a plot of land at a reduced price. H's dad is sending us listings. I'm looking up house loans.
__________________
Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
unaluna
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#12
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Quote:
If I remember from learning about the ADA in grad school there is some year of mobile homes that were required to have halls wide enough for a wheelchair. I don't know the age on mine but when we had to do an assessment of our living spaces for a fictional patient I did my kitchen and living room and then ended my report because the hallway was too narrow for even a pediatric wheelchair so the end result was "since client could not reach bathroom this space is not appropriate for this client". I love PA. I went to college there and worked at a summer camp there during my college summers that was the best thing I've ever done.
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 9 mg/day patch,, ,Gabapentin 1600 mg & 100-2 PRN,. 2 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx3 daily |
unaluna
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unaluna
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#13
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I'm hoping I learn to love pa. I'll be closer to family which is nice but I don't trust the hospital because they're in the middle of nowhere.
__________________
Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
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#14
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I understand that. I live in the middle of nowhere and try to not use local doctors/hospital ever. I even go an hour away to see my family doctor and everything else is 2 hours away. However when I broke my ankle the ambulance only goes to the nearest hospital and so I was local and had a local surgeon. That was a very good experience for the most part. The hospital messed up my meds which wasn't great but it was partly my fault for not asking what I was being given and paying attention to things missing or added. I know now. Otherwise it was as good an experience as 6 days of bedrest and surgical recovery can be. I wouldn't want to be local for psych but that's soley because of deep hatred for the only local psychiatrist that I am aware of. And since I only hate him for something involving a patient of mine 20 years ago that's not a particularly fair judgment. I'm told the nearest psych place is actually quite nice with newly remodeled everything and everyone has a private room. However if I need IP again it will certainly be in the city but that's where my pdoc is and if I'm there they listen to her and don't undo things that took 25 years to put together. This is a rambling way to say it might be better than you think
.
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 9 mg/day patch,, ,Gabapentin 1600 mg & 100-2 PRN,. 2 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx3 daily |
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#15
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I once stopped at a hospital in PA while driving the american way to NYC from michigan. Danville. It made me want to move there! Except i was already moving to Brooklyn. I remember i was treated effectively for my physical ailment.
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#16
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Sometimes the middle of nowhere hospitals are better than mid-sized city hospitals. Look at Dartmouth-Hitchcock in Lebanon, NH (and then compare it to the hospitals in Manch-Vegas or Nashua)
__________________
Something’s always coming you can hear it in the ground It swells into the air with the rising, rising sound And never comes, but shakes the boards and rattles all the doors What are we waiting for? What are we waiting for? |
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#17
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Thank you guys. I'm really nervous about moving there. My sister in law loves it there but she's never been on a psych hold. I don't like that they don't seem to have specialists.
__________________
Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
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#18
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My husband leaves Saturday and I won't see him again until late August. We'll hopefully fix the trailer as an ADA trailer by August when I go down. He'll have work full-time, school full-time and remodeling. So he'll be busy. I need to finish my drawing for my uncle. And hope September comes fast.
__________________
Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
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