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#1
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Um...hi everyone.
I used to post here for awhile...it's been ages though. Paranoia kind of set in, but no blame on any of you who are struggling, suffering...just my very messed up head. Needed to reach out here again. There are certainly other boards here I would like to post on, but...needing first to talk about this "Severe Enduring Eating Disorder" of mine. Forgive me if I am about to repeat things I have already shared here, be irritatingly redundant. And even more shamefully, I am sorry after my absence that I have returned here with no successes to share, and have not been here to support you all as you so kindly supported me... Anyway...this July, I will be 51 (!!!) years old. I have "lived" with my ED since I was 11 years old, or if, while she was allive (My mum passed away in November of advanced dementia), my mother would always tell me that she believed I have had my ED since I was 18 months old...clamping my mouth shut, refusing even things most kids would delight in eating. I was the smallest in my kindergarten class, the other kids used to carry me around like I was a doll.. Anyway, I don't know about my mum's theory. Certainly at 18 months it was not about losing weight, but some sort of early power struggle...and even then, in my uh...how to put it without going into detail? Chaotic, unstable, frightening home. So, at 11, in a professional ballet school with as you can imagine, being surrounded by eating disorders and all manner of terrible things, (do not be decieved by the beauty of ballet, the ballet world is actually very dark.) Ugh...again, forgive me if I already posted this history ages ago and am boring you all to tears.. I will attempt to share where I am at TODAY... The last time I was in IP tx fir my ED was in 2024. I did their virtual OP fir about 4? weeks before my anxiety got the best of me, right before I reached my BMI deemed appropriate for my therapist to tell me I ws then ready to do the body image work. And...that was (and is) what I really needed to work on at that point. But of course, I fled... I was eating after dicharging myself from OP, but not at all how I was taught in tx. But I decieved myself into thinking that I was eating, with more freedom, less anxiety, cooking more, somehow less daunted and terrifed of grocery stores. My boyfriend/friend whatever he was and still is, kept making me food, I suppose worried that, "If you get anorexic again I won't be able to help you. I will be working again." He kept makig comments about my body, which he said and says, "I am just trying to boost your confidence." But. these comments did the exact opposite. They brought on disgust, shame, and anger in me. I have not seen him in a few weeks as indeed he has been working a lot, but yesterday, and today on the phone he said,"Tomorrow I can stop by and bring you some food." And, that old familiar voice had me hearing it speak firmly, "Oh no thanks.""You sure?" "Yeah, no thanks." So, I was just in hospital, d/c a week ago Friday, not ED related, another crisis, (I am safe right now i assure you.)... At first I was being "good" that first dinner in pysch emerg...I ate it all..but the praise from the nurse just made me feel humilated, like a pathetic and weak glutton. The pyschiatrist who interviewed me happened to be my last IP (also not ED related but as in a prior post here, was aware of my anorexia) doctor, who asked me if i have been eating. I said I think, well...I am not trying to lose weight intentionally, but I did buy a scale, was shocked at the number...much lower than I expected, and of course not what/whom I see in the mirror...she looked me up and down and told me, "Yes, you HAVE lost weight since I saw you in May." "Have I?" Felt bewildered..., told her I returned the scale the following day. She asked how many meals I eat in a day. I was so...far away from myself...conciously I was not lying, but did see myself hold up x fingers. She had me admitted, but no beds at that hospital, so was transferred to a hospital I had never been to. It actually turned out to be a really good unit, and I had a wonderful and validating and empathetic pyschiatrist. At first I dutifully went and picked up my trays, dutifully ate my whole trays...and then, again...something snapped in my head and most everything on my trays I had requested be pescatarian which they respected, pretty much all of it was then, again, "illegal" "forbidden". So...I began to restrict. I began to shamefully lie to the sweet nurses who would ask, "How ws breakfast/lunch/dinner did you get snack? "Good/Good./Good...no, was not hungry. I felt terrible, pure evil. They were so lovely. My doctor never asked me a thing about my ED, and gave me the dx I have fir over 25 years thought fit me, DID, rsther than BPD... Still trying to make sense of this. He said a long admission would not be benificial, only pyschotherapy with the goal being integration...uncannily enough he told me, "You have a fractured pysche.".which is something I have described myself as fir a very long time... But sorry...again I digress. While still in hospital I ended up ordering another scale, and it was at my door as soon as i came back from the hospital. Of course, before anything else? Took it out of the box and stepped on it-to my sick and twisted delight at the number. Ok..so, even aftr 3 consectutive years in tx, I never reached "solid recovery"... But now it is back to a dangerous place...old "safe foods",other behaviours so deeply ingrained I have begun to embrace once again... So, it seems I am stuck in the vortex again...to the point where, once again this morning at the grocery store I was terrified and got what was "safe", and quickly got outta there. This morning I felt, and still here after 4 PM, feel alone and isolated, the ED promising me "company" "focus away from everything else plaguing me", "friendship"... Yes, again, sick and twisted... However, thinking back on my last stint in tx where I ws very sick, the past few days my IP therapist telling me that at my age, with how long I have had this illness, how many times been in and out of tx...my chances of recovery are, pardon her terrible pun, "slim." Then, I felt so angry...why did they bother the trying to help me when that precious space could have gone to someone just at the beginning of their illness, she or he having more of a chance at freedom and a rich and full life? Again, have this logical part of me, trying to sway me back to being, well, rational...and the other part of me dragging me back into the mire that is anorexia. My doctor in the hospital said, "I don't see someone whom is profoundly depressed." But...I am miserable. i know I ought to reach out on the dissociation board here, and forgive me for not simply focusing on my ED here... I was honest with my OP pyschiatrist and therapist, and will be with my pyschoanalyst, and my pyschiatrist always focuss pretty much soley on my ED when it is "more active", "since it endangers your health" This is far too much to cope with on my own. The man in my life, my only social connection really called earlier, asked how I am, and I found myself quietly saying,"I need help. I need help." And he said why, whst happenened? i told him nothing happened and that if I tried to explain it to you you would not understand etc... So he dropped it and went on to talk abot himself. I was a thousand miles away. Alright, this has been far too long of a post, especially after disappearing for so long, and no pressure, any of you, to respond... Simply venting I suppose... Thank you for reading if you have, and again, forgive me for not having returned here in a better place... Sending you all strength and peace... *Please forgive stupid typos.... |
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#2
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I'm so sorry you're struggling. Feel free to vent here all you like.
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Bipolar 1, PTSD, anorexia, panic disorder, ADHD quetiapine (Seroquel), lamotrigine, lithium, guanfacine (Intuiv), pantoprazole (PPI for stomach), iron, magnesium, fish oil, vitamin C, Citracal There's a crack in everything. That is how the light gets in. --Leonard Cohen |
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#3
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Hi, @Blueberrybook.
So nice to receive your reply this morning. I remember you well. You were always such a great support to me, and so insightful and compassionate. Thank you for kindly welcoming me back... i hope you are holding steady out there. Thank you again.
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#4
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@Autumn88 - Ugh, I have gained weight on my meds and am not happy about it. I had to buy jeans in one size larger because my old ones were too tight. I just finally up and quit taking Depakote a month ago which is known to be a weight gainer. Finally admitted I quit it to my pdoc this morning, and he said he wants to start me on lamotrigine. I have taken lamotrigine in the past and found it to be weight neutral, I hope that is the case again. I also hope I can lose weight to fit back in my old pants. I'm not doing any severe dieting though I am exercising a lot (well define a lot). Anyway I do walk for a long time but not a beyond crazy amount or at an insane pace. Most people without an ED would view it as "healthy" but in my heart I know I'm doing a bit of overexercise. I just want this weight gone.
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Bipolar 1, PTSD, anorexia, panic disorder, ADHD quetiapine (Seroquel), lamotrigine, lithium, guanfacine (Intuiv), pantoprazole (PPI for stomach), iron, magnesium, fish oil, vitamin C, Citracal There's a crack in everything. That is how the light gets in. --Leonard Cohen |
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#5
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@Blueberrybook
Oh...I know from my whole pharmacy of meds over the past...almost 30 years, how awful and triggering the ones that make you gain weight are. I am sorry the depakote caused you to gain weight and feel badly about yourself. Ironically, as you well sadly know, the meds to stabilize our mood, if they cause us to put on weight, especially those of us with an ED tend to be a deal breaker, so I empathize... Many years ago,I was briefly on lithium, which made me put on enough weight that an ex boyfriend literally laughed and poked me in the stomach. That incident, although eons ago, still flashes in my mind. Whenever my pyschiatrist suggests a new med, my first question out of my mouth is,"Does it cause weight gain?" I have been on lamotrigine since 2004 for my epilepsy, and indeed it has been weight neutral. No other side effects either...just of course had to watch at first for the dreaded rash. It has kept my epilepsy under control, my neuro told me I woud need to take it for the rest of my life. I do not suffer from the tragic illness that is bipolar, but when I first started taking it, my neuro's perspective was that it seemed to be helping with my mood... I take 150 mgs 2x a day. If you start it, I so hope you find it a good med for you. As for the exercising, I remember how you really struggle with it... Certainly I know how it feels when those jeans don't fit. I recall how hard you tend to push yourself, and it pains me you are still struggling. I am glad you still have this board for support, although I wish you were free of your ED... And I know on top of it, your other mental health afflictions plague you a great deal. Please remember of what value you are (yes, most hypocritcally, ought to attempt to convince myself to believe this). Thank you for sharing. Try and be kind to yourself today. However, believe me, I know all too well how challenging that can be. I care. |
Blueberrybook
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#6
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Ugh, I'm on lithium too and I really wish I weren't. They put me on it when I was completely out of it during my last psych hospitalization
And I'm on Seroquel another weight gainer though in the past I was able to exercise enough I didn't gain weight on Seroquel.I'm sorry you can't seem to find the support that you need So many people just don't get what having an ED is like including the mental health professionals who are supposed to help us.
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Bipolar 1, PTSD, anorexia, panic disorder, ADHD quetiapine (Seroquel), lamotrigine, lithium, guanfacine (Intuiv), pantoprazole (PPI for stomach), iron, magnesium, fish oil, vitamin C, Citracal There's a crack in everything. That is how the light gets in. --Leonard Cohen |
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#7
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Autumn, what is tx?
Since you have epilepsy, I suggest you read Humiliated and Insulted, Dostoyevsky's first long novel. It has a character who is epileptic and who also is very thin from poverty. There is another character who loses weight due to extreme stress and emotional turmoil. And the narrator gets thin from lack of money and from feverishly writing his next novel against a deadline. I recommend the book to you because you will see thinness as an attribute of either emaciating poverty or being humiliated and insulted by other people or extreme circumstances, rather than, as is the case in our modern world, as a desirable, to-strive-for state of being. Plus, it is a riveting novel. I recommend the translation by Ignat Avsey if you do not mind a heavy British English slant in what you are reading.
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Bipolar I w/psychotic features Last inpatient stay in 2018 Lybalvi 5/10 mg Gabapentin 1200 mg Naltrexone 2 mg Vitamin B-complex (against extrapyramidal side effects) Long-term side effects from medications, some of them discontinued: - Hypothyroidism - Obesity |
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#8
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@Tart Cherry Jam - I don't know. For me at least I find reading books with very thin characters highly triggering for my ED. I don't know, part of me just feels compelled to get thinner along with the character. So I'd caution reading books highlighting thinness no matter the cause (poverty, illness, stress, anorexia, etc.).
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Bipolar 1, PTSD, anorexia, panic disorder, ADHD quetiapine (Seroquel), lamotrigine, lithium, guanfacine (Intuiv), pantoprazole (PPI for stomach), iron, magnesium, fish oil, vitamin C, Citracal There's a crack in everything. That is how the light gets in. --Leonard Cohen |
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